Rare Diseases International
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What is a rare disease? Find information or help. What is an orphan drug? Improve the safety of your medicines. List of the latest marketing authorisations and orphan medicinal products designations. Living with a Rare Disease. Rare diseases in the arts.
International Conference on Rare Diseases and Orphan Drugs. International Conference on Rare Diseases and Orphan Drugs.
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Julia FITZGERALD
Yann Le Cam
Plate-forme Maladies Rares, 96 Rue Didot
Paris, 75014
FR
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Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseasesPARSED CONTENT
The site rarediseasesinternational.org states the following, "NGO Committee for Rare Diseases." I observed that the webpage also stated " Rare Diseases International Policy Event." They also stated " RareDiseaseDay events took place in a record 93 countries worldwide! First Rare Diseases International Policy Event, Geneva, February 10 2017. The NGO Committee for Rare Diseases is launched! Watch the entire November 11th inaugural meeting here! News Events."ANALYZE MORE DOMAINS
Open recruitment for clinical studies of your disease. Opening of new clinical sites doing research on rare diseases. Activities from affiliated awareness and advocacy groups. And future opportunities to participate in research! YOU can help in the fight against rare diseases. Improve methods in studying your disease.
Beyond the Diagnosis Art Exhibit. Beyond the Diagnosis in the News. 1 in 10 Americans has a Rare Disease.
Learn About Them-You Could be the One in a Million Diagnosed With One. Being an identical twin myself, when I came across this rare disorder, I was obviously very interested! This blood imbalance may occur at any time during pregnancy or during birth. The Twin to Twin Transfusion Syndrome Foundation. 1Is the placenta monochorionic? 2 Are the babies the same sex? 3 Can you see the dividing membrane? According to a.
Τι είναι τα σπάνια νοσήματα;. Σπάνια θεωρείτε μια πάθηση που επηρεάζει ένα μικρό ποσοστό του πληθυσμού. Ζώντας με μια σπάνια πάθηση. Ημερίδα Ενωμένοι για καλύτερη φροντίδα. Εγχειρίδιο Πληροφοριών για άτομα με Σπάνια Νοσήματα στην Κύπρο.
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